The Joys of EDS

by Emma Grey

Emma with her cats

My joints, they ache

And muscles quake

When called upon for use

And due to it

For hours I sit

Upon my round caboose.

A touchy thing

Its moods will swing.

There’s much it can’t abide.

I can’t conceal

The dread I feel

When asked to go outside.

I spot a queue:

“What shall I do?

Oh no! My POTS will flare!”

I have a trick:

My walking stick

Becomes a little chair.

My walker, too,

For chair will do.

For walking, it is best.

But often-time,

Though “in my prime” –

You’ll find me home at rest.

Ehlers-Danlos syndrome (EDS) is a group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Read more about it on the Medline Plus website.

Postural orthostatic tachycardia syndrome (POTS) is a condition that causes a number of symptoms when you transition from lying down to standing up, such as a fast heart rate, dizziness and fatigue. Read more about it on the Cleveland Clinic website.

Emma Grey is a Melbourne-based short-form writer of poetry, blog posts, and book reviews. She is also cohost and editor of the Books Without Borders podcast. Emma lives with chronic illness and disability and often draws on these experiences in her writing. 

Next: Morning Observations: Recovery From Hurt by Sharon Berry


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